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Monday, 1 December 2014

As the Wheels turn !!

I really hope that I am not boring you with too many updates, but here I go with another update ! My daily life seems to get better and all I want to do is share it via my post. The wheelchair Services maintenance man arrives this morning, ostensibly to change my snow wheels for indoor wheels. I much prefer the outdoor ' boots ' as transgressing the London pavements is far less stressful on the spasms !! The maintenance Man is flumects, he has been given the exact wheels as are on my chair !!!!......... We finally work out that the new ones are solid, and the existing ones run the risk of puncturing. So hoisting again, and snow wheels changed. This I am happy, I just need to get used to them, and pavement wheeling is far less stressful now. Indoors requires some getting used to - but this I can do !

It is quite remarkable, how many facets are envolved with a wheelchair - Prior to my injury, I just looked at someone in a chair and asummed that all chairs were the same. How wrong I was ! Lucky enough to have been part of the Stanmore rehab, one quickly realises how different each and every chair is ! Positioning, cushion, back-rest etc etc, is all part of the deal of a cripple ! Ideally, one would be better off by going to a private company to spend a fortune on what you ultimately need. Cost prohibited, and then the maintenance etc, etc becomes your responsibility. Once out of Alcatraz , your chair is issued by your local counsil. Luckily enough, I will now be an out-patient for life, and having been up there last week, they now write to my council to inform them of the changes needed ! More and more paperwork ! And, in my opinion, a waste of time ! In the meantime I remain in a chair not ideal, but will be sorted ! Eventually !!!!

Huge excitement !, today my standing frame was delivered ! Yes, all carers present, plus the care agency rep in order to sign off that this contraption can be worked by the carers. A huge step in the long winded process of recovery !! Hours of training, what was supposed to be a half hour excersise, landed up being far longer than expected !. I had all intentions of going to the office, but after the training, and collectively up's and down's, totally exhausted, put into bed again !! Am eternally greatful to my sponsor for the funding for this essential apparatus. We have already agreed that daily, after work, and just before bedtime I will stand for an hour. All in the quest for finding my legs again !!

Eugene arrived back today for his weekly shift. Gotta love him........ All semblance of order and clinical appropriate care resumed ! Being Obsesive  about cleanliness etc, etc, he takes control again !  Thankfully, I do not have to think for myself ! He is so on the ball from my pills to my leg bag...........etc, etc.

As per my last post, I have taken a huge risk, in trusting the care company's word for it. Jeeves 2 ( 24/7 ) will not return next week. I have a Polish lady starting full time next week !!! In my gut I trust !

So, tomorrow it is back to the office to see how far my learning of the Dragon program has gone !!!

As always, posted with love and on-going good health ! Remember to thank your higher being for what you have, don't question the hurdles, don't sweat the small stuff, and build bridges - tomorrow is not guaranteed !

With love,

G.

2 comments:

  1. LOVE IT!! Keep those run flat wheels turning Gav ;-)

    Lise x

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  2. Gav I'm so happy your frame has arrived! Keep up the good work! Kilaminjara here we come! ! Xxx much love

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