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Saturday, 17 October 2015

How to Work the System - it's an ongoing " Learning Process " !

My week has really ended well. Firstly, yesterday I received a call from the Back Up Trust to confirm that all boxes had been " ticked " by the relevant " powers that be ", and I have been officially accepted to go skiing in Sweden in January. For the first time since my injury, I will be subjecting myself to an experience whereby I will be engaging 100% of my time to be with disabled people on a one to one basis ! Something that in the past, I had always tried to avoid. Not wanting to acknowledge, believe, accept....... Call it what you like, but here I am going away for a week with complete strangers who are in similar conditions as I find myself in - for the moment !!! The confirmation in itself, has left me excited, privileged and more accepting of what can be achieved against all odds ! It's an amazing program set up by an Olympic skier who had a SCI, and built a resort in Sweden to accommodate disabled people only ! The project is admirable, to say the least ! A fully adapted aeroplane, to get you there, complete with personal carer, in house physios, adapted resort throughout etc etc etc......... I so forsee a " Mr Bean " kinda scenario of us cripples being put into bath tub sort of mobiles and pushed down the slopes !!! Will make for a good You Tube video called " Bladder, Bowels and Black runs " !!! Secondly, the amazing win SA had against Wales today. Go Bokke !!!. Have now got my carers very interested in the game of rugby. Rameez, my Pakistan, Muslim weekender, arriving with the weekend fixture and daily regime revolving around what time the games are on. The polish fill in also joining in, with no clue as to what's going on, but shouts and screams when we do !!!. Talking about the Jeeves, just when all seemed to be in place, and running smoothly, we had a wee incident last week which could have catastrophic effects on my long term endeavour to keep all four of the chain working !! After a particularly long day out, having pushed the Italian to the limits, and returning home to the primary Jeeves - an argument broke out about a coffee cup having been left on the drying rack that had not been put away !! Yes.... I kid you not !! I swear, the hardest thing I have found with this condition has been trying to manage and keep carers happy !. So, this pathetic squabble starts, and I feel my BP rising, and I lose total control !! I very, very seldom lose my temper, but enough is now enough !! I vent my frustrations, scream and shout and tell all concerned that I am sick to death of their " childish, school girl " behaviour !!! Everyone storms off in a huff - numerous emails to the agency etc etc, and within earshot of all of them I call up my co-ordinater at the agency, and tell her to please go ahead and source new carers all round ! So...... The links in the chain could start being replaced ..... Will keep you posted. So...... The foghorn hooter cum speaker is charged again and the Italian and I set off for the mall. Doing a " run through " at Tesco's, we come across a guy pushing his kid in a trolley with his pants WAY below his bum. Indicative of today's fashion trends. Only, he is probably my age, has the fattest Arse in town, and looks totally ridiculous ! I tell him so, over the lod hailer - the Italian runs away !! Then we stumble across a man " talking " to the scented candles !! Yes ! - so I decide to answer him from behind the cover of the stand !! - what a joke !! Will keep you updated ! With love !! G. Xxx

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