PA's, Patience and ongoing inspiration !!!

So the new year kicks in, skiing course completed and a new aspiration is needed to fuel the passion to make life as exciting as it can be !! I am amazed and astounded as I could be, and rarely knock the system, but as SCI with benefits, one would assume that given the stats, the " system " would encourage people to get back into mainstream employment ! Sadly, I cannot support the current " system ". Yes one might get the benefits of Housing and council tax sorted, but under this law, then one is not allowed to work ( income related ) for more than 16 hours a week without losing all benefits !! Nobody voices this, the truth being, that if you are lucky enough to be on the highest rung of the disability grant you will then receive a monthly grant of £557, plus if you qualify " income support " allowance of more or less the same - sorry followers I cannot and will not be destined to a life of sitting in front of the tv, eating Pringles and knowing I have £1000 to survive on per month .


Few people know about the intracies of running a home in order to keep it up to the standards one should, and lots of people would agree that that money is enough to live on, etc etc etc - forgetting energy costs, water bills etc etc..... Load of shyte ! - and I won't get political in my blog. But certain MP's are routing for a reduction in benefits !!!! Let us work, let us gain independence etc etc and don't pull the carpet from undernieth us !! Ok, bitch session over !!!.


As you all know the skiing was an amazing experience !! And we have already organised a reunion for April !! As many of us that can, will travel to London for hopefully a fun filled day of eating, drinking and a bit of sight seeing thrown in !! No doubt about it, we will have fun, reminisce of the wonderful time had in Sweden, and create havoc on the streets with us rollers and strollers !!! My horn will be fully charged and ready for the crowds......... Will keep you posted !


As mentioned in my last blog, I arrived back to a PA abandonment , and a situation of having to source new PA's for various reasons !!! I have been lucky enough to secure Martin as the second live in carer / PA, who was on our course in Sweden, and am so pleased to have him on board - two weekly turn around shifts with my ' cave man ' current live in PA.Both from Czech Republic, and they will fly in and out of the U.K., to do their shifts !!! Amazing how things work out - I was totally overwhelmed by the situation , stopped worrying, gave it out to The universe and whoooola, it's all worked out.


Health wise , I seem to have plateaued at the moment - but continue to go my excersize's, standing frame and FES regime every morning in the ever hopeful manner of trying to find my legs again ! This...... Seems to be a long long journey, but, it's a journey that has taught me more outa life than I could ever have expected ! The friendship's, the patience, and the ongoing will to make the body work again !!!! Stick in a chair for life... Does not work for me. Be that as it may, one needs to accept ones deck played, and play ones hand accordingly. Finding my legs again, against all the doctors advice is a challenge I bring upon myself - it can and will be done. In time.


With the renewed attitude to 2016, that anything is possible, I have volunteered to give up some time to do some charity work, in the hopes of furthering the awareness of SCI - waiting to hear if my applications are accepted. Perhaps, I'm a little too outspoker about my condition and what people need to know, but, I cannot change that, as much as I've tried. Real is real !!! And the way I see it, is not to pussy foot around the realities, but rather " tell it like it is " - I'm WAY to out there for these " ticking " of the boxes kinda people !! I'll keep at it though !!!!


Not a terribly informative blog, but one just to let you know that I'm still here, still Breaking the rules and moving forward with my ongoing quest !! Remember to be appreciative of what we have, tell people you love, and build all bridges !! Posted with love and ongoing good health wishes !

G