Paper work and trivia

Just another ordinary day in my life, which seems to be ambling along with no definition ! For 11 months now I have been the subject of some nurse or other's daily routine - you will wear this, that, you will take your pills, you will get to Physio etc etc. today the realisation hit me, that I have actually been on the outside for a whole month. Yes...... A month already !!!

The time has come, where it is now imperative that I take control ! Easily apparent that what the carers do is JUST the way it is ! - No, No, No,..... The time has come to put things into place with regards to getting my life back and trying to find these obnoxious, non-responsive, legs of mine.

As I previously mentioned, in going forward, I will not resign myself to a life governed by a joystick and rubber wheels......it just does not bode well with me !, Between doctors appointments, Physio's, and loose guts, I, today made up my mind to take this challenge to a higher level and take control of my situation - God gives the hardest fight to His strongest soldiers !!!! And a fight I am willing to persue. Perhaps, all through my life I have leaned toward the less confrontational side of things .......... Go with the flow, keep quiet to keep the peace, better the devil you know etc etc etc !

Well, Hell no, it is time to change from accepting mediocrity and turning into a ' Biiiiaaaatch ' from hell and stop being subservient to the elements that govern my daily care. First step - call to care agency,..... With as immediate as possible - change one of my full time carers - as lovely as he is, he has no spinal cord injury experience, and lacks any kind of confidence required to take care of me - I am NOT going to direct my care from the hoist sling whilst being tended to get in/out of bed ! - called and sorted with the agency ! Have changed, my double up, as of next week to report for duty from 7 - 7 as apposed to 10 - 10. This will enable both carers to attend to me from 7 am and should in theory halve the morning regime. None of them are going to be happy, but the usual two and a half regime, in my opinion needs to be reduced to one hour ! They are gonna hate me !

Be that as it may, it is now about ME ! And having done as much as possible to ease the burden, to help them in the morning, they need to jack themselves up, or apply to the agency to work in care homes with extremely old people, where time is of no essence !

Enough bitching, ....... Today was the last of the paperwork mound to be filed and dealt with -  Bar her royal highness department of tax !!! Don't go there ........ Will sort it out befor the week is up ! God save our Graciuos Queen, but God save us mere mortals for late submissions !! Have spoken with them, and after loads of paperwork etc, will be absolved of all fines - As the kind lady said " nobody would have wanted to be in THAT position " Well fuck no honey, it's a little low, I retorted........ Straight over her head ! Are you in counselling ? She asks ! Yes but nothing that is helping, SILIENCE !!! Then I say, do you mind if you record this on file, and I will get the return in asap. Of course she says, duly noted - better sort it out befor the week is up !

Am thoughly pleased that the Physio's have met with me, and I have another session with them on Friday  - standing in the frame - ever so needed to keep the pins and head gelled into a overall mix. Was as stiff as a rake when they called at home to do the assessment, but am sure that I will find my ground on fridxd